Even if youβre not chronically ill or disabled you still only have a limited amount of energy in life.
Donβt waste it worrying about people you canβt help.
Focus on people who want your care.
Defend the people who need our attention.
Show up for the vulnerable and the oppressed.
Existing and resting is sometimes defiance and if thatβs all you can do thatβs enough.
This isnβt the year to roll over and give up. Iβm not.
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Absolutely devastated over here
[#]davidlynch
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I find this time of year tough.
I leave the Christmas period able to completely rest because everything and everyone stops for a bit and I have the energy to live as everyone else does.
I have about 50% of the energy I should have due to energy limiting illness.
A Christmas break shows me how well I could be if I didnβt have to work. Giving that up again is hard.
Anyway happy new year for those that find this time of year refreshing.
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Oh didnβt need to worry. Was struggling until I put my jam plugs on now back to dancing.
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Done all my adulting for the day so now itβs time to try skating in new skates.
I spent 5 years skating in flats when I was a kid but now nearly 40 and newly terrified of falling.
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Winter solstice is here.
This means weβre at the shortest day. The midwinter point. Spring is on its way. Itβs all downhill from here for anyone else that hates the dark of winter.
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New skates are beautiful.
Just need to relearn how to skate without a heel now.
And the plates are detachable. So I can wear them as regular shoes.
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Today is hopefully new skates day.
Hope they fit. I hate having to buy things online but itβs a skate desert here.
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Started drawing again the past few weeks.
Just for me.
I used to really enjoy writing for the web for free but now that AI can suck all that up and make money from it. All my motivation has gone for that.
Iβm going back to art on paper or on my device which will never go online.
Getting some happiness from that.
Trying to find that kid me who could draw anything they wanted without worrying about it.
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I realised today that I havenβt read any news sites in close to a week and not watched any TV in nearly two weeks and I am feeling much better for both.
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My mum used to moan about all the time I use to spend on IRC as a teenage and now I am on an IRC-like all day because of work. π€£
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Friends,
Looking for some daily podcast suggestions that are not politics, news or sports.
Ideally something motivating, interesting or inspiring.
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I just spent the day setting up my new electric drumkit. Plugging it in. Tidying away all the packaging and trying it out.
It was lovely and I can already hear an improvement in my jazz drumming.
A day of calm and fun that I really needed.
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Iβm putting my focus on caring for you and others. Look for kindness and quiet, it hasnβt died.
We persist despite everything.
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Still playing Densha de go.
Usually with cat.
Getting a bit better too.
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For anyone else worrying about politics this week that is totally outside of our control:
These are life lessons from chronic illness. Best of luck friends. β£οΈ
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Happy Halloween my dears.
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Only been a week but the painkillers:
So Iβll go back to how I was.
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Can confirm that the Nintendo Alarmo supports daylight saving time.
Doesnβt matter anyway because I was woken at 5am on the dot by a cat booping my nose.
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Ah going back on painkillers to keep working. Feeling like a bit of a failure but hopefully Iβll get some quality of life back.
Can always wean myself off them again.
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