Just out from CDC: A really great review of ethical dimensions of data science in public health. It gives a practical set of questions for researchers and data scientists to consider in themes of privacy, responsible stewardship, justice as fairness, and inclusivity and engagement.
https://pmc.ncbi.nlm.nih.gov/articles/PMC11748135/
[#]DataScience #PublicHealth #Epidemiology
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I guess this got out just under the wire.
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@noamross well I just bookmarked it! (and yes I review my bookmark)
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@noamross
On the one hand, looks like a great paper.
On the other hand, eight of the authors work for the CDC. How on earth did this get published with a copyright statement saying that the Association of Schools and Programs of Public Health owns the copyright, and a permissions link implying that Sage gets to adjudicate requests to reuse it? If this is a work prepared by an officer or employee of the US gov't as part of that peron's official duties, it should be in the public domain.
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@kdnyhan I think this a journal-level issue? The journal itself is a government-associated publication: https://www.hhs.gov/surgeongeneral/reports-and-publications/publichealthreports/index.html
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@noamross It is a journal-level issue, and I think the whole of PHR should be open access without APCs and with a clear license allowing reuse. But I especially think that PHR articles *by fed gov't workers as part of their official duties should be in the public domain.
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@noamross I am also wondering -- typically, PHR articles are not available in PMC until a year after their publication date, unless their authors (or their authors' funders) have paid an Article Processing Charge for immediate OA, current $4400. But Sage Choice articles are supposed to be given a CC BY-NA or CC BY license, which this paper doesn't have....
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@noamross
And I see that all thirty PHR articles that have been published so far this year are free in PMC already, which is unusual -- in the past I've seen <25% of PHR articles be immediate open access.
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@noamross
I wonder if there was a policy change? As it happens I wrote to my senator about this last week... surely that couldn't have led to any changes so fast. Or maybe the new administration has changed things?
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@kdnyhan I wonder if there was a rush to get things out as the old admin came to a close, which could have included "let's use the budget to publish a bunch of OA", and/or some mistakes in processing.
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