Ancestors

Written by Fullmetal Manager 🌈💖🔥 on 2025-01-06 at 20:04

I'm learning that with long COVID, my body needs additional supplies of vitamins, enzymes, and other bits that it's running short on

I don't like being on so many medications and supplements, but I tried rotating a few off and found the hard way that my body needs something from them

So in case it helps others or someone else found something I haven't yet, these are supplements that I now know I have to take regularly:

Multivitamin — generally useful

Vitamin D — frequently low in long COVID

Magnesium — helps prevent cramps (frequent cramps are a signal of low magnesium)

Molybdenum — essential for breaking down toxins (especially important for vegan, vegetarian, or gluten free diets!)

Biotin — supports skin, nails, and hair growth

Unclear value/result:

Omega-3

Cod liver oil

Haven't yet tried:

Glutathione — haven't tried yet but recommended for fatigue & CFS

Thyroid complex — many long COVID symptoms match hypothyroidism

COQ-10

Non-supplement things:

Hydration, electrolytes, and ample sleep are a crucial foundation

Pacing and resting are essential for chronic fatigue and PEM

[#]LongCovid #ChronicFatigueSyndrome #fatigue #CFS #PEM #PostExertionalMalaise

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Written by Brian Hawthorne on 2025-01-06 at 20:13

@saraislet COQ10 has helped me a lot. And I use the Visible App with a pulse tracker for realtime pacing and rest reminders. And cannabis.

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Toot

Written by Fullmetal Manager 🌈💖🔥 on 2025-01-06 at 20:43

@bhawthorne I use a Fitbit currently — how did you get started with Visible, and how has that been for you?

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Descendants

Written by Brian Hawthorne on 2025-01-07 at 04:31

@saraislet I think I found them on one of the old LC/ME-CFS forums when they were in development. The staff are mostly patients. Once they released the support for a polar armband tracker, i got a discount for signing up during the beta period. It is just the right amount of guidance without being annoying.

Morning check in is putting on the armband while still I bed, answering a question about sleep quality, then lying still for a minute while it measures heat rate variability. Using your history and these measurements, it gives a 1-5 stability estimate for the day. It is remarkably accurate after using for a while.

During the day, if my heart rate is elevated too much, I get warnings to take it easy. I can also set an activity budget which tracks exertion over the day. I also record symptom severity sometimes during the day or for the evening checkin. Less than I used to.

It really helps me to know both when to slow down and went to reduce my plans for the day. The result is that I can get more done and stay closer to baseline. I rarely crash any more, and when I do it is rarely more than a day. And when I have to ignore the notifications (like digging a grave for my dog last week), I can at least be prepared for the inevitable crash and can plan for a quieter day the next day or too.

@

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Written by Fullmetal Manager 🌈💖🔥 on 2025-01-07 at 05:31

@bhawthorne thank you, that's really helpful, I think I'll try it

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