‘Right to Repair for Your Body’: The Rise of DIY, Pirated Medicine
https://discuss.tchncs.de/post/21533341
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Ok this is pretty cool, I just don’t know if I would trust it yet. I was actually thinking about the concept a bit ago, that I really don’t know what I’m taking if my doctor prescribes something to me… I do really like the concept, though.
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I would if I could!
I will say, there’s something scary about crafting your own medicine, I’d expect medicine to be highly precisely crafted in labs by highly educated professionals and that it’d be difficult and perhaps dangerous to make and take your own medicine. I could be wrong.
The things they write in the article are amazing, people can make their own life savine cure to hepatitis C for about 70 USD for their whole home made treatment, that just works? It seems too good to be true without any caveats.
Oh and, final thought, “Four Thieves Collective”? They really don’t beat around the bush. I like that
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It certainly sounds like it should be more difficult than that (and as far as I, a non-medical professional, know it is) but keep in mind the pharmaceutical industry is worth billions to a select few, and keep in mind back when Eli Lilly’s Twitter was hacked and posted insulin, a substance that costing some people over $1000/month just to live, would be free, their stock dropped 4.37% the next day.
Like I said, I’m no medical anything but like with previous products that have claimed to be medically beneficial, I think it’s worth at least taking a step back and looking at what someone stands to gain by claiming something vital is simple versus what those who claim otherwise stand to lose.
After all, I think we’ve all heard the story of the doctor who, in a fit of desperation, cured his wife’s cancer with bicarbonate of soda and then did so with more of his patients before being sued by Big Pharma.
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Hack? It’s not even that. Just musk in his infinite wisdom enabling pay-to-get-checkmark so all the fake/satirevaccounts immediately jumped on the opportunity.
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Oh, was that it? I’d heard someone had hacked the EL Twitter account. That’s even dumber. Thanks for the correction and highlighting how much dumber the fallout was, luckily my misunderstanding didn’t take away from the main point.
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HAHA no! Someone literally just changed their twitter handle, display name and avatar, then bought a blue check, and THAT’S IT.
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It is easy to make if you have the know how and some equipment, also if it is already known what you need to make. For example, aspirin is known structurally (unless I am mistaken), so if you have the chemistry know-how and equipment, you can make your own.
However the tricky part is to get it as a safe medicine to take, that you do not have impurities that could be dangerous, toxic. You will need to be able to make quality and safety checks like that. Which I am not sure how easy that really is.
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White willow bark and devil's claw root contain naturally occurring salicylic acid, similar to aspirin. Better, but it tastes funky.
ETA: https://www.mountsinai.org/health-library/herb/slippery-elm#:~:text=Slippery%20elm%20contains%20mucilage%2C%20a,throat%2C%20stomach%2C%20and%20intestines.
Nothing wrong with homemade medicine. Just know what you're doing. I've used many, on myself and now adult child. Grandparents on both sides taught me. Their's taught them. I've used comfrey to heal deep wounds on friendly strays.
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Along the same line of pain management did you know that pretty much all the poppy seed (for ornamental flowers) you can buy at any garden store are opium poppies? You can grow them easily, then macerate the whole plant and extract in off the shelf alcohol and strain it for essentially laudanum which is great for a sleep aide or pain in low to moderate doses. Quite safe as well, obviously if you don’t abuse it.
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The CLR (the reactor to create the medicine) costs about US$300-500 to make according to their website. Then there’s actually figuring out the software. They don’t sell recipes,as it were, so there’s time involved as well.
I’ve been poking around their site tonight after I saw this posted to another community. It’s worth looking at, imho.
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I’d expect medicine to be highly precisely crafted in labs by highly educated professionals and that it’d be difficult and perhaps dangerous to make and take your own medicine. I could be wrong.
You’re not wrong—all of 4TVC’s work is extremely dangerous. Not as dangerous as you’d think, though. And, compared to living a life crushed by debilitating disease or debt, do those risks outweigh the outcome? Probably not.
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Four Thieves vinegar was supposedly used by four grave robbers to protect them from bubonic plague, each thief added their own herb to the infusion. It apparently worked well enough, they negotiated their freedom by giving up the recipe.
Nowadays, people vary the herbs, garlic is the constant.
It's no secret herbs like oregano (most savory herbs actually) have antimicrobial properties. When you're poor and a doctor's visit is a day or more lost pay, the daycare is paid regardless of attendance, then the uninsured cost of the visit and pharmaceuticals, you learn.
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That’s such a cool backstory, thanks!
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Fascinating article!
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As a European, this looks insane to me.
Capitalism working as intended though, undercutting the competition and all that.
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My thoughts exactly. In Europe it’s part of our social welfare
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Wouldn’t “right to repair” regarding medicine just be universal healthcare?
Most people in right to repair states/countries still bring their iPhone to someone to fix (though they have the right to fix it themselves just as people I guess have the right to try to fix themselves rather than go to a doctor).
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I don’t think you fully understand right to repair.
Companies (most egregiously Apple, but Samsung, Microsoft, and other tech, farming, and medical companies as well) have been actively introducing barriers to self or third-party repairs for decades. Apple serializes their displays on iPhones, so if you were to swap the screen on an iPhone without Apple’s authorization or without specific hardware, your iPhone disables specific features on your new screen, even if it’s a genuine Apple part. Apple also has incredibly unfair and invasive contracts with their authorized service providers such that they have to provide a slower return window than Apple’s own service centers. Furthermore, Apple et al. don’t sell every part needed to fix phones, and even when they do sell parts, they are often sold as packages or bundles that make the parts unnecessarily expensive.
To be clear, it’s rare for companies to ban third-party repairs outright. However, the vast majority of device makers artificially limit who can buy spare parts and who can fix their devices via software, by tight supply chain control, lawsuits, or getting governments to seize the few parts that could be obtained. This means that most third-party stores can’t compete with manufacturers because they can’t get genuine parts without becoming “authorized”, and by becoming authorized, they can’t provide a quality service.
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I’m a process chemist. I do this sort of thing for a living.
These guys don’t even know why what they’re suggesting is so dangerous. Do not do any of this.
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Could you elaborate a bit?
People make and take illicit drugs all the time. What’s the difference here?
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People make illicit drugs chock full of impurities all the time too, and it fucks people up.
There are standards for purity on pharmaceuticals. Impurities have to be ridiculously low. Lower than you can measure in your garage.
These dudes either don’t know you need to even measure purity or have decided that it’s inconvenient and are ignoring it.
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Or, and hear me out, they know what the risks are and have assessed that they are reasonable when the alternative is death? I do disagree with them asserting they are higher-quality though, or I would at least like to see incontrovertible proof of that.
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“Our recipes are consistent, like a good espresso maker.”
“Okay cool, how do you know that?”
“So many questions! We’re hackers! We are very smart.”
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Cool. Yep. You aren’t wrong mate.
So I’m guessing you believe people should choose death instead, right? Or you’re going to pay for all these people’s medications?
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That’s a false dichotomy if I’ve ever heard one, dude.
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Did you read the article, the part where the author’s close friend died from a treatable illness? What other alternatives do you suggest?
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If Health won’t make piracy legal, it’s hard to believe anything else will.
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I’m a quality chemist. I test the API’s that process chemists make to be sure they’re right. Yeah, reactions don’t always proceed as intended. These guys do understand the risks, and are only trying to provide an option. Here in the US the insurance companies are perfectly willing to let us die because funding expensive treatment hurts their bottom line. Unless you’re independently wealthy, a small scale reactor at home may become the only option a person has available. Definitely risky, but why not take the chance when corporate America has determined you’re not valuable enough to save?
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Hey guys, many other countries have figured out that healthcare doesn’t have to be a privatized, for-profit nightmare. Perhaps that’s an option worth exploring.
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Plenty have been fighting for it, but there’s an uphill battle against “but that’s socialism and socialism is evil!” and those that personally benefit financially who stand in the way.
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Oh, I agree it won’t be easy, particularly when taking profits from rich people.
I’ve heard it likened to a house full of asbestos. Knock it all down and there’s likely to be collateral damage, but meticulously taking it apart will take a considerable amount of time. I feel it would be easiest for governments to purchase the insurance companies, then slowly amalgamate so it’s all one network open to everyone.
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Ironically most of these patented meds were developed with US funding, but somehow it isn’t socialism when corporations benefit.
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Haha, what?!? That’s crazy talk!
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Isn’t medical tourism a thing in the US too; like you can fly to a developing country, get your treatment done by top specialists there and fly back to US and the cost would still be lower than what it would have taken to do in home country.
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It has been popular. People were traveling out of country for joint replacements. Costs were less for travel, surgery, and recovery than what they would pay for it here. Covid put a damper on travel for a couple years, so not sure if it’s still as popular. I would consider it if/when I need knee replacements done. Considering what I’ve heard about the quality issues of joint replacements in the US, I don’t want one here.
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Oh yeah that should be cheap considering Cuba is right around the corner, for example.
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You can fly to a developed country and still get treatment cheaper.
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You’re ignoring the fact that it’s nearly impossible to implement this right now. Big pharma and numerous politicians want to keep the status quo for as long as possible. By the time we have more affordable medicine, numerous people would have suffered greatly or died because they couldn’t access the medicine they need. Having solutions that don’t require an entire rework of the healthcare industry is necessary so that we can save as many lives as possible.
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Oh yes, your pay-to-win government duopoly isn’t helping anything, but don’t call it impossible. The Affordable Care Act was a start, and I don’t doubt the right people could make universal healthcare access a real thing in the US.
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I’m not disputing the reasoning behind why this is important. But “it is important” does not imply that their solution is the right one.
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There really should be better options, but it’s where this country is currently at, where some home chemistry is something people would have to consider. You’re right, it’s dangerous and certainly has a lot of risks. With some background in it myself and access to resources that the general public doesn’t have, I would still be hesitant to try something I’d cooked up in the basement at home. But, I’m also not at the point where I’m going to die from a treatable but unaffordable disease.
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There is exactly one easiest option: be like the rest of the civilized world and ban consumer marketing of medicine. HUGE amounts of the prices of drugs are just down to TV ads. “Ask your doctor about…” is horse shit, let your doctor decide what prescription drugs you need. And fire the cocaine-riddled, law-breaking marketing departments that soak up so much money.
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But the right solution is inconstitutional and anti-corporate! Even socialist and maybe even “woke”! So, this is the option TPTB are leaving us with.
Don’t like it? The second most useful thing to do compared to this is to ready your guillotine. That is the language they understand.
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No, just follow the money. It’s all going into marketing. Ban marketing (like the rest of the world!) and prices drop overnight.
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It’s not even funding the expensive treatments, it’s not charging a 1000x markup hurting their bottom line. It’d be one thing if it were genuinely expensive medicine (i would still propose a distribution method other than “capitalism”) but it’s not.
If these meds were available for a reasonable price i don’t think we’d be seeing groups like this.
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I think these guys might be able to hack through the process and get stuff done and think getting other people to follow them will be trivial as well. But just because they didn’t mess up, doesn’t mean other people won’t. A large majority might end up hurting themselves if they follow in their route.
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I mean if you're going to die without access, roll the dice.
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Or if your access would be bullshit constrained.
Endocrinologists fuck up hormone dosages on a regular enough basis that transfems will buy the estrogen powder, convert to injectable solution, and do it themselves.
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That’s the thing. They have no way of even knowing if they messed up! I’m not even sure the way they could be messing up is a thing they know they should be worried about.
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Yeah that was my first thought too. While I kind of get the spirit of it, in practice this is so absurdly dangerous IMO. Even if someone has the best possible intentions, there are so many things that could go wrong with this, especially if you include things like long-term effects that aren’t immediately apparent, or interactions with other drugs, especially if you’re taking other home-made pills with potentially unknown ingredients. While it can be frustrating to hear about a promising new medicine that won’t be available for years, there’s a reason why they spend so long testing these things.
IMO the better (but much more difficult) solution is reforming the medical industry so that it’s easier for people to see a doctor and actually afford to get medicine. I’m not usually a fan of big government stuff, but medicine is one of those things that just needs to be kept under supervision I think.
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As someone with a chemistry background I’m surprised you think the industry even takes half these precautions for our current drugs.
Not even talking about ‘state of the art’ meds here were talking the plastics from cars that’ve been around since the 60’s is under studied (but hey its sponsored by oil money so its ‘safer’)
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The global medical community had to beg the US to ban lead from consumer products like paint and gasoline for close to 80 years and our politicians kept taking bribes from lobbyists to ignore medical science… But did we learn from that and ban lobbying? Nope, lobbyists are now bribing politicians to ignore the plastic epidemic and global warming
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I’m a dumbass. I don’t do this sort of thing for a living. Do you think it will ever be as safe as properly manufactured and prescribed drugs?
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No. Never. It takes whole teams of people to get it right. (Even then, they sometimes get it wrong.)
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You wouldn’t pirate a medicine, would you?
You wouldnt’ pirate a human thought would you? The basis of this entire sub, that one pile of neurons deserves for life the rights to a computation.
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I just wrote it because it rhymed with the now memed 2004 anti piracy announcement You wouldn’t download a car that was rightfully criticized.
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…Are you a bot? Your account is less than a day old and this comment… almost made sense. But what the heck does this mean?
…that one pile of neurons deserves for life the rights to a computation.
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Ideas/art/concepts/recipes/books are just waiting around to be discovered. We as a species discover them or develop them from our shared culture. And a bunch of rich fucks think they should get perpetual rights because they own all the content mills/researchers, regardless of how much the rest of the species would benefit.
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{Gee, I wonder why that so popular…](www.youtube.com/watch?v=eRPeU1DYOWA)
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And you know what bloody sucks? ADHD meds are one of the few that you can not and probably should not make at home. Why? Without watching the whole video, I can tell you the medication he can’t get ahold of is Lisdexamphetamine. The precursor chemicals of which are the same as for Methamphetamine. It’s also in the same schedule as opiates. So I’d imagine that even the guy the article is about wouldn’t mess around with those publicly, and perhaps even privately as the DEA heavily monitors sales of the precursors.
I’m so fucking sick of the meds that make my brain work being out of stock :(
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