Toots for hadleybeeman@w3c.social account

Written by Hadley Beeman on 2025-01-18 at 20:42

Thank you to everyone for another wonderful @ukgovcamp!

This year felt cautiously hopeful, enthusiastic, & looking for the spaces in which to do good. Fingers crossed that everyone in the community finds those spaces, whether they be teams, policy areas or tech advances.

[#]ukgc25

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Written by Hadley Beeman on 2024-12-12 at 21:26

This blog post (by @wz43rtx and @torgo ) explains the ethical web document’s journey better.

https://www.w3.org/blog/2024/w3c-statement-on-ethical-web-principles-guides-the-community-to-build-a-better-web/

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@tag @w3c @rhiaro

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Written by Hadley Beeman on 2024-12-12 at 21:24

We began the Ethical Web Principles as a @tag finding, to capture the underlying ethics beneath all our architectural decisions and advice.

Today, it’s become a @w3c statement, which means it now has endorsed by W3C as a whole.

Huge thanks to my co-editors, @torgo and @rhiaro; to the rest of the TAG; and to everyone who has made it better.

https://www.w3.org/TR/ethical-web-principles/

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Written by Hadley Beeman on 2024-12-04 at 16:35

Hey W3C members! I’m running for a @tag spot, to continue my work for the open web on the TAG.

I’d be grateful for your vote!

Election closes 10th of Dec.

https://www.w3.org/2024/10/tag-nominations

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Written by Hadley Beeman on 2024-10-21 at 23:19

The language matters because the policy wording gets interpreted into technical architectures. The more we talk about “data sharing”, the more we make everything about sending round large spreadsheets — and all the privacy risks and barriers to innovation that come with.

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Written by Hadley Beeman on 2024-10-21 at 23:18

“Data access” is pulling the info you need when you see a patient (as a clinician), or checking your test results when you need to know (as a patient).

(It’s Spotify or Netflix — you don’t need your own warehouse of content. You can stream when you’re ready.)

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Written by Hadley Beeman on 2024-10-21 at 23:17

“Data sharing” means swapping large xls files of personal data about us — outside of our control. It’s a very old way of handling data.

(Think: buying videos and CDs so you’ll have the movies or music you might want to play at any point.) 2/

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Written by Hadley Beeman on 2024-10-21 at 23:16

While I’m at it, the topic isn’t “data sharing”, it’s “data access”.

The words matter. Here we go:

[#]NHS #digitalRecords

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Written by Hadley Beeman on 2024-10-21 at 22:21

So please, enough calls for one monolithic database. We know those are exorbitantly expensive, complicate life for all users, stifle innovation at the software layer and create massive privacy and security risks. Think: web and internet. 8/8

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Written by Hadley Beeman on 2024-10-21 at 22:20

This approach:

• gives everyone real-time data to make decisions on

• leaves the “source” of the data in charge of their DPA(GDPR) responsibilities

• mimics reality. Which is always the best system architecture. 7/

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Written by Hadley Beeman on 2024-10-21 at 22:19

This is a SOLVED PROBLEM. We know how to do this. It’s a big transformation, and requires some national infrastructure (so the software knows where to find my info across the NHS network), but it’s eminently do-able. 6/

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Written by Hadley Beeman on 2024-10-21 at 22:19

There is no technical reason that specialist — who might be across the country — couldn’t open their software and pull down my latest blood test results, ordered by my GP at home. Live. In real time. Giving them up-to-date info AND saving the cost of repeating the tests. 5/

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Written by Hadley Beeman on 2024-10-21 at 22:18

There is NO technical reason why I couldn’t have an app (say, the NHS app) that pulls all my info from everywhere I’ve been seen. There is no reason my GP (who needs info arranged differently to me) couldn’t have software that does the same. 4/

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Written by Hadley Beeman on 2024-10-21 at 22:17

This is how things work.

This is also how the web and internet work. For example. I open my email client, and it pulls down — in real time — email from multiple accounts stored in different organisations. 3/

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Written by Hadley Beeman on 2024-10-21 at 22:16

I see my GP, that generates notes on my GP record. My GP has those.

My GP sends me for blood tests at the local hospital. The local hospital has those results.

I get referred to a specialist in secondary care. That specialist’s trust has my info from those interactions. 2/

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Written by Hadley Beeman on 2024-10-21 at 22:15

Lots of discussion about digital health records in the NHS today. Modernisation, and privacy. But here’s the thing — we DON’T need a massive new database. Here’s how we do it. 1/

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Written by Hadley Beeman on 2024-10-12 at 12:19

Wishing everyone at #nhshackday my today creative minds, clean data and smooth debugging. I can’t wait to see what you all make!

[#]NHSHD

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Written by Hadley Beeman on 2024-07-29 at 16:12

This thread is also available as a blog post:

https://www.w3.org/blog/2024/third-party-cookies-have-got-to-go/

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Written by Hadley Beeman on 2024-07-29 at 16:11

We will continue to offer our help to those trying to make the web better (as we write in our design principle “Leave the web better than you found it”), and we hope that all browsers and user agents will continue to work collaboratively to make that happen.

https://www.w3.org/TR/design-principles/#leave-the-web-better

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Written by Hadley Beeman on 2024-07-29 at 16:11

We sincerely hope that Google reverses this decision and re-commits to a path towards removal of third-party cookies.

We have updated our finding “Third party cookies must be removed” to highlight the importance of removing them from the web.

https://www.w3.org/2001/tag/doc/web-without-3p-cookies/

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